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Sydney – A Chronic Illness Warrior
My name is Sydney and I am 15 years old from Central New Jersey. I was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) in January 2020. At the time, I wasn’t quite sure what that meant, but no one else around me felt the same way I did. I was passing out frequently and had…
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Life Is Better When You’re Swimming
“Maverick was diagnosed with Legg Calvé Perthes Disease in May 2019, a few days after his 7th birthday. Because of the loss of blood flow to his hip, the head of his femur has started to deteriorate. He has to be completely non-weight bearing to avoid total bone collapse. He needs crutches and a wheelchair…
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Lessons Learned from COVID-19
Vacations, parties, school, concerts… Just to name a few of the many engagements you may have had cancelled the past few months. Many have the hope that things will go back to normal soon, but this is what everyday looks like for a chronically ill child. Never take for granted the simple blessings in life!
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Smiles All Around
Smiles all around! River loves receiving her monthly encouraging cards.
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Of Course This Brings Me Joy!
When reading a card from our foundation wishing Logan joy, Logan exclaimed, “JOY, of course this brings me joy!!!” This kid is such a bundle of joy and love.