Day of a Spoonie

My name is Sydney and I am 15 years old from Central New Jersey. I was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) in January 2020. At the time, I wasn’t quite sure what that meant, but no one else around me felt the same way I did. I was passing out frequently and had…

Join us in eating for change this Tuesday, November 3, at Chipotle in Queen Creek from 5-9 p.m.

October is Dysautonomia Awareness month! I myself suffer from a form of Dysautonomia called Postural Orthostatic Tachycardia Syndrome (POTS). Dysautonomia is an umbrella term used to describe neurological disorders that cause malfunction of the Autonomic Nervous System which regulates heart rate, blood pressure, digestion, temperature control and more. Dysautonomia is more common than you would…

I had the amazing privilege of meeting the sweetest and strongest girl. Hadlee has fought diabetes almost her entire life. I was so excited to bring her a gift basket and the news of gymnastics lessons! She deserves all the joy in the world. Read more about Hadlee below from her mom’s eyes. “Hadlee Jo…

Brooke Miller, Age 9, suffers from Cerebral Palsy, Epilepsy, and Aicardi Syndrome. We granted her family some ways they could spend time together. The best part of meeting Brooke is when she kept reaching out to grab my hand. I could feel her love. And have you ever seen a cuter smile?! “I am still…

Smiles all around! River loves receiving her monthly encouraging cards.