Vacations, parties, school, concerts… Just to name a few of the many engagements you may have had cancelled the past few months. Many have the hope that things will go back to normal soon, but this is what everyday looks like for a chronically ill child. Never take for granted the simple blessings in life!
Smiles all around! River loves receiving her monthly encouraging cards.
Special delivery for a super special girl!
When reading a card from our foundation wishing Logan joy, Logan exclaimed, “JOY, of course this brings me joy!!!” This kid is such a bundle of joy and love.
A big thank you to Arendelle Magic for giving these kids such a special surprise. We loved bringing joy to them by setting up a zoom call with Elsa and Anna from Frozen! The kids were even prepared with their own Frozen clothing and dolls.
October is Dysautonomia Awareness month! I myself suffer from a form of Dysautonomia called Postural Orthostatic Tachycardia Syndrome (POTS). Dysautonomia is an umbrella term used to describe neurological disorders that cause malfunction of the Autonomic Nervous System which regulates heart rate, blood pressure, digestion, temperature control and more. Dysautonomia is more common than you would…
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