Day of a Spoonie

I had the amazing privilege of meeting the sweetest and strongest girl. Hadlee has fought diabetes almost her entire life. I was so excited to bring her a gift basket and the news of gymnastics lessons! She deserves all the joy in the world. Read more about Hadlee below from her mom’s eyes. “Hadlee Jo…

My name is Sydney and I am 15 years old from Central New Jersey. I was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) in January 2020. At the time, I wasn’t quite sure what that meant, but no one else around me felt the same way I did. I was passing out frequently and had…

“Maverick was diagnosed with Legg Calvé Perthes Disease in May 2019, a few days after his 7th birthday. Because of the loss of blood flow to his hip, the head of his femur has started to deteriorate. He has to be completely non-weight bearing to avoid total bone collapse. He needs crutches and a wheelchair…

October is Dysautonomia Awareness month! I myself suffer from a form of Dysautonomia called Postural Orthostatic Tachycardia Syndrome (POTS). Dysautonomia is an umbrella term used to describe neurological disorders that cause malfunction of the Autonomic Nervous System which regulates heart rate, blood pressure, digestion, temperature control and more. Dysautonomia is more common than you would…

We are so grateful to have had an awesome group collect stuffed animals, cards, blankets, etc. It’s so amazing to see people serve others during a time of need!

Special package arrived! This loveable little girl has dreams to be the next Darci Lynne one day. She loves her new ventriloquist puppets and art supplies. River is such a strong girl with hopes and dreams for the future! She is a joy to be around and brings a smile to everyone’s face. Stay strong…