Day of a Spoonie

  Does volunteer work actually make you happy? “People who volunteer actually experience a boost in their mental health.” Helping others is an easy way to help yourself too! Read more about the benefits of volunteer work HERE.

My name is Sydney and I am 15 years old from Central New Jersey. I was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) in January 2020. At the time, I wasn’t quite sure what that meant, but no one else around me felt the same way I did. I was passing out frequently and had…

Flashback to today last year when we held our Gala Dinner Fundraiser! Due to COVID-19, this fundraiser, as well as many others, have been cancelled this year. We have many ways you can help that won’t even cost you anything!

A big thank you to Arendelle Magic for giving these kids such a special surprise. We loved bringing joy to them by setting up a zoom call with Elsa and Anna from Frozen! The kids were even prepared with their own Frozen clothing and dolls.

“Maverick was diagnosed with Legg Calvé Perthes Disease in May 2019, a few days after his 7th birthday. Because of the loss of blood flow to his hip, the head of his femur has started to deteriorate. He has to be completely non-weight bearing to avoid total bone collapse. He needs crutches and a wheelchair…