Day of a Spoonie

Smiles all around! River loves receiving her monthly encouraging cards.

Brooke Miller, Age 9, suffers from Cerebral Palsy, Epilepsy, and Aicardi Syndrome. We granted her family some ways they could spend time together. The best part of meeting Brooke is when she kept reaching out to grab my hand. I could feel her love. And have you ever seen a cuter smile?! “I am still…

“Maverick was diagnosed with Legg Calvé Perthes Disease in May 2019, a few days after his 7th birthday. Because of the loss of blood flow to his hip, the head of his femur has started to deteriorate. He has to be completely non-weight bearing to avoid total bone collapse. He needs crutches and a wheelchair…

A big thank you to Arendelle Magic for giving these kids such a special surprise. We loved bringing joy to them by setting up a zoom call with Elsa and Anna from Frozen! The kids were even prepared with their own Frozen clothing and dolls.

Vacations, parties, school, concerts… Just to name a few of the many engagements you may have had cancelled the past few months. Many have the hope that things will go back to normal soon, but this is what everyday looks like for a chronically ill child. Never take for granted the simple blessings in life!