Day of a Spoonie

Flashback to today last year when we held our Gala Dinner Fundraiser! Due to COVID-19, this fundraiser, as well as many others, have been cancelled this year. We have many ways you can help that won’t even cost you anything!

Vacations, parties, school, concerts… Just to name a few of the many engagements you may have had cancelled the past few months. Many have the hope that things will go back to normal soon, but this is what everyday looks like for a chronically ill child. Never take for granted the simple blessings in life!

My name is Sydney and I am 15 years old from Central New Jersey. I was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) in January 2020. At the time, I wasn’t quite sure what that meant, but no one else around me felt the same way I did. I was passing out frequently and had…

We are so grateful to have had an awesome group collect stuffed animals, cards, blankets, etc. It’s so amazing to see people serve others during a time of need!

Special delivery for a super special girl!

Aiden, age 8 is a sweet boy with a love for basketball. He loves watching basketball and playing basketball.  We hope to have given him joy with his new at home basketball hoop.  Aiden deserves all the joy in the world. Stay strong and keep playing. 👊🏀