Day of a Spoonie

We are so grateful to have had an awesome group collect stuffed animals, cards, blankets, etc. It’s so amazing to see people serve others during a time of need!

Vacations, parties, school, concerts… Just to name a few of the many engagements you may have had cancelled the past few months. Many have the hope that things will go back to normal soon, but this is what everyday looks like for a chronically ill child. Never take for granted the simple blessings in life!

When reading a card from our foundation wishing Logan joy, Logan exclaimed, “JOY, of course this brings me joy!!!” This kid is such a bundle of joy and love.

  Does volunteer work actually make you happy? “People who volunteer actually experience a boost in their mental health.” Helping others is an easy way to help yourself too! Read more about the benefits of volunteer work HERE.

A big thank you to Arendelle Magic for giving these kids such a special surprise. We loved bringing joy to them by setting up a zoom call with Elsa and Anna from Frozen! The kids were even prepared with their own Frozen clothing and dolls.

October is Dysautonomia Awareness month! I myself suffer from a form of Dysautonomia called Postural Orthostatic Tachycardia Syndrome (POTS). Dysautonomia is an umbrella term used to describe neurological disorders that cause malfunction of the Autonomic Nervous System which regulates heart rate, blood pressure, digestion, temperature control and more. Dysautonomia is more common than you would…