Similar Posts
The Next Darci Lynne
Special package arrived! This loveable little girl has dreams to be the next Darci Lynne one day. She loves her new ventriloquist puppets and art supplies. River is such a strong girl with hopes and dreams for the future! She is a joy to be around and brings a smile to everyone’s face. Stay strong…
Helping Hands
We are so grateful to have had an awesome group collect stuffed animals, cards, blankets, etc. It’s so amazing to see people serve others during a time of need!
Make Noise for Turquoise- Dysautonomia Awareness Month
October is Dysautonomia Awareness month! I myself suffer from a form of Dysautonomia called Postural Orthostatic Tachycardia Syndrome (POTS). Dysautonomia is an umbrella term used to describe neurological disorders that cause malfunction of the Autonomic Nervous System which regulates heart rate, blood pressure, digestion, temperature control and more. Dysautonomia is more common than you would…
March 20, 2020
Brooke Miller, Age 9, suffers from Cerebral Palsy, Epilepsy, and Aicardi Syndrome. We granted her family some ways they could spend time together. The best part of meeting Brooke is when she kept reaching out to grab my hand. I could feel her love. And have you ever seen a cuter smile?! “I am still…
Sydney – A Chronic Illness Warrior
My name is Sydney and I am 15 years old from Central New Jersey. I was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) in January 2020. At the time, I wasn’t quite sure what that meant, but no one else around me felt the same way I did. I was passing out frequently and had…
Lessons Learned from COVID-19
Vacations, parties, school, concerts… Just to name a few of the many engagements you may have had cancelled the past few months. Many have the hope that things will go back to normal soon, but this is what everyday looks like for a chronically ill child. Never take for granted the simple blessings in life!