Of Course This Brings Me Joy!

My name is Sydney and I am 15 years old from Central New Jersey. I was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) in January 2020. At the time, I wasn’t quite sure what that meant, but no one else around me felt the same way I did. I was passing out frequently and had…

“Maverick was diagnosed with Legg Calvé Perthes Disease in May 2019, a few days after his 7th birthday. Because of the loss of blood flow to his hip, the head of his femur has started to deteriorate. He has to be completely non-weight bearing to avoid total bone collapse. He needs crutches and a wheelchair…

  Does volunteer work actually make you happy? “People who volunteer actually experience a boost in their mental health.” Helping others is an easy way to help yourself too! Read more about the benefits of volunteer work HERE.

Vacations, parties, school, concerts… Just to name a few of the many engagements you may have had cancelled the past few months. Many have the hope that things will go back to normal soon, but this is what everyday looks like for a chronically ill child. Never take for granted the simple blessings in life!

A big thank you to Arendelle Magic for giving these kids such a special surprise. We loved bringing joy to them by setting up a zoom call with Elsa and Anna from Frozen! The kids were even prepared with their own Frozen clothing and dolls.

Special delivery for a super special girl!